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Have your say   Patient Perspectives in test result communication, management and follow-up - Consumer Reference Group

Wed 04, Apr 2018

Deadline: Late April/early May
Who: Australian Institute of Health Innovation, Macquarie University

Researchers from the Australian Institute of Health Innovation at Macquarie University are conducting a government funded, hospital-based study called “Delivering safe and effective test result communication, management and follow-up”.

This study is conducted in partnership with NSW Health Pathology and the Australian Commission on Safety and Quality in Health Care. This study wants to make test result management systems safer, more effective and more person-centred.

The quality and safety of patient care can be put at risk if results for medical tests (such as blood tests or x-rays) are not reviewed or followed-up. For example, diagnoses may be missed and patient care may suffer as a consequence. Health information technologies play a key role in the communication and follow-up of test results.

To find out more about the patient perspective the researchers have interviewed patients in Emergency Departments about their experiences when having medical tests done in a hospital. For example, they asked:

  • Did your doctor explain to you which tests you should have and why? (and did you understand them?)
  • Did your doctor explain the results to you? (and did you understand them?)
  • Did you get to see your results? Why yes? Why not?
  • Would you like to be able to access your results, for example after you leave the hospital? Why yes? Why not?
  • Is there anything that could be done better when it comes to your medical test results?

For their consumer reference group, they are looking for consumer representatives who have experiences (positive or negative) with test result management in a hospital setting (especially Emergency Departments and Intensive Care Unit) either as a patient or as a carer.

As a member of the consumer reference group you will take part in regular meetings and help researchers develop their research questions and take part in discussions of initial findings. Occasionally, you might be sent documents for review. Consumer reference group meetings will be held 1-2 times per year and will focus on one particular topic to be determined by the researchers based on data analysis. You will be reimbursed for your time at a rate of $187 for each consumer reference group meeting attended. Meetings will be held at Macquarie University and reasonable transport and parking costs will be covered.

More information and to apply: If you are interested in participating in this research, please contact Maria Dahm, Research Fellow via email: maria.dahm@mq.edu.au or call 02 9850 2419

 


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