SURVEY: Health Consumers NSW is working in partnership with Sydney Health Partners to map consumer and community involvement in health research. We want to hear about your involvement in health research!
Be a consumer representative on NSW Health’s Lumos project and share your experience or interest in the use of technology and data in health. The Lumos program links data from across general practice, hospital, and other health care settings providing an end to end overview of the patient journey.
Risks and benefits of partnering with the pharmaceutical industry//
Some consumer organisations are only able to operate with the support of pharmaceutical companies, while others have explicit policies of not accepting money from industry. Industry funding allows some groups to be able to offer additional services to their members, yet others have concerns that such partnerships impinge on their independence.
The report outlines a set of principles, as developed by health consumer representatives, in response to the challenges faced by NSW Health with protecting staff, patients, families, and all who enter the facilities, from COVID-19.
We hope it will inform and bring to the fore patient and family perspectives around the issues faced by restricting patients’ visitors into health facilities. It recognises each of the stakeholder groups as essential and significant players in keeping each other safe and acknowledges that no one stakeholder group can succeed alone. We are all dependent on each other.